We are so very close to discharging! It has been a long road...today is day 66. Thomas's nurses and doctors have taken such great care of him. Yet, I will be so ready to wave goodbye! Here is the quick update:
- Thomas's bottle feeding "light bulb" went off last week and he began taking his bottles without any trouble. 2 days ago he pulled his feeding tube out of his nose and it has been bottles only since then. Poor guy, I'm sure he was tired of that tube.
- he hit 6 pounds yesterday!
- They did another ECHO Monday. The PDA (hole in the heart) has not closed yet. But this actually might be working in our favor since they did see the pulmonary valve stenosis (which they didn't see last time). So in an abnormal way, the two are balancing out. We will see the cardiologist in a few weeks to discuss the long term plan.
- he has had high blood pressure the last few days which may be because he doesn't like the pressure cuff or could be related to the heart. Again, we will wait and see if cardiology want to give him anything for that.
So, unless something changes, we hope to be home tomorrow or Saturday! Thankful for God's mercy. Praying for his continued provision for us and Thomas. It will be a real delight to celebrate Jesus's birth with this baby in my arms.